OC 01 - Hemophilia - Joint health clinical

Moderator(s)

• 

  Rungrote Natesirinilkul, MD

  Associate Professor
  Pediatrics
  Department of Pediatrics, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand
  Chiang Mai, Chiang Mai, Thailand
• 

  Roberta Gualtierotti, PhD

  Associate Professor
  Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Milan, Italy; Università degli Studi di Milano, Department of Pathophysiology and Transplantation, Milan, Italy
  Milan, Lombardia, Italy

Presentations:

• 13:00 – 13:15 ICT

  Use of artificial intelligence to guide untrained individuals performing self-ultrasound scans of the knee joint
  

  Co-Author: Nima Teimouri – Novo Nordisk A/S, Søborg, Denmark

  Co-Author: Daniel Michelsanti – Novo Nordisk A/S, Søborg, Denmark

  Co-Author: Peter Waede Hansen – Novo Nordisk A/S, Søborg, Denmark

  Co-Author: Susan Kras – Mohawk College, Institute for Applied Health Sciences, McMaster University, Hamilton, Ontario, Canada

  Presenting Author: Johannes Roth, MD PhD FRCPC RhMSUS – Children’s Hospital of Central Switzerland and University of Luzern

  Co-Author: Lars Bryup – Novo Nordisk A/S, Søborg, Denmark

  Co-Author: Marek Zak – Novo Nordisk A/S, Søborg, Denmark
• 13:15 – 13:30 ICT

  Assessment of hemophilic joints in a low resourced area using clinical tools: the effect of different prophylaxis types
  

  Co-Author: ILHAM YOUSSRY – Faculty of Medicine, Cairo University

  Co-Author: Rania El-Taweel – Cairo University

  Co-Author: hadeel Seif – Cairo University

  Co-Author: Rania Sami – Cairo University

  Co-Author: Ebtehal Taha – NCUCH

  Co-Author: Karim Okasha – Cairo University

  Presenting Author: Assad haffar, Master of Science – World Federation of hemophilia (WFH)

  Co-Author: Marwa Abd Elhady – Cairo University
• 13:30 – 13:45 ICT

  Use of the Joint Activity Damage Exam (JADE) ultrasound protocol for hemophilic joint assessment enables determination of annual rate changes of intraarticular tissue measurements
  

  Presenting Author: Parthiv V. Sheth, MD – University of California San Diego

  Co-Author: Peter Aguero – University of California San Diego

  Co-Author: Michael Glenzer – University of California San Diego

  Co-Author: Isaac Nwi-Mozu – University of California San Diego

  Co-Author: Bruno Steiner – Washington Center for Bleeding Disorders

  Co-Author: Cindy Bailey – Orthopaedic Hemophilia Treatment Center at Orthopaedic Institute for Children Los Angeles

  Co-Author: Doris V. Quon – Orthopaedic Hemophilia Treatment Center at Orthopaedic Institute for Children Los Angeles

  Co-Author: Rebecca Kruse-Jarres – Washington Center for Bleeding Disorders

  Co-Author: Annette von Drygalski, MD, PharmD, RMSK – University of California San Diego
• 13:45 – 14:00 ICT

  Interim analysis of joint outcomes in adult and adolescent patients with severe hemophilia A receiving efanesoctocog alfa during the phase 3 XTEND-ed long-term extension study
  

  Presenting Author: Annette von Drygalski, MD, PharmD, RMSK – University of California San Diego

  Co-Author: Christoph Königs – Goethe University Frankfurt, University Hospital, Department of Pediatrics and Adolescent Medicine, Frankfurt, Germany

  Co-Author: Barbara A. Konkle – Washington Center for Bleeding Disorders and the University of Washington, Seattle, WA, USA

  Co-Author: Cedric Hermans, MD, FRCP, PhD – Saint-Luc University Hospital

  Co-Author: Liane Khoo – Institute of Haematology, Royal Prince Alfred Hospital, Sydney, Australia

  Co-Author: Kathelijn Fischer – Centre for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands

  Co-Author: Nobuaki Suzuki – Department of Transfusion Medicine, Nagoya University Hospital, Nagoya, Japan

  Co-Author: Hailing Guo – Sanofi, Bridgewater, NJ, USA

  Co-Author: Umer Khan – Sanofi, Cambridge, MA, USA

  Co-Author: Linda Bystrická – Sobi, Basel, Switzerland

  Co-Author: Alejandro Fernandez – Sanofi, Zurich, Switzerland

  Co-Author: Elena Santagostino – Sobi, Basel, Switzerland

  Co-Author: Lara Mamikonian – Sanofi, Cambridge, MA, USA

  Co-Author: Robert Klamroth, MD – Vivantes Klinikum, Friedrichshain, Berlin, Germany
• 14:00 – 14:15 ICT

  People with mild hemophilia are at risk of joint disease: the nationwide cohort HiN-6 Study
  

  Presenting Author: Ricardo Mesquita Camelo, MD, MBA, MSc, PhD, PostD – Department of Internal Medicine, Faculty of Medicine, Universidade Federal de Minas Gerais (UFMG), Belo Horizonte, Brazil

  Co-Author: Cees Smit – Department of Clinical Epidemiology, Leiden University Medical Center (LUMC)

  Co-Author: Lize F. D. van Vulpen – Van Creveldkliniek, University Medical Center Utrecht, Utrecht University

  Co-Author: Jeroen Eikenboom – Department of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, The Netherlands

  Co-Author: Erik Beckers – Department of Internal medicing - Hematology, Maastricht University Medical Center +, Maastricht, the Netherlands

  Co-Author: Louise Hooimeijer – Department of Hematology and Oncology, UMC Groningen Beatrix Children’s Hospital, University Medical Center Groningen, Groningen, The Netherlands

  Co-Author: Michiel Coppens – Department of Vascular Medicine, Amsterdam UMC location University of Amsterdam

  Co-Author: Saskia E.M. Schols – Department of Hematology, Radboud university medical center, Nijmegen, The Netherlands

  Co-Author: Frank W.G Leebeek, MD PhD – Department of Hematology, Erasmus University Medical Center, Rotterdam, The Netherlands

  Co-Author: Mariëtte H.E. Driessens – Netherlands Hemophilia Patient Society (NVHP), Nijkerk, the Netherlands

  Co-Author: Frits R Rosendaal – Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.

  Co-Author: Suely M. Rezende, MD, PhD – Universidade Federal de Minas Gerais

  Co-Author: Johanna van der bom – Leiden University Medical Center Leiden, Leiden, Netherlands

  Co-Author: Samantha C. Gouw, MD PhD – Department of Pediatric Hematology, Emma Children’s Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, the Netherlands